The Trial Experience

The Trial Experience

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What to Expect as a Participant

If you are interested in participating in a clinical trial, you will go through a series of steps to ensure you match the requirements and to help you make an educated decision about proceeding.

The research team will first schedule an appointment to learn more about you and provide the preliminary information about the trial. This includes the trial’s purpose, treatment information, the potential benefits and risks, the length of your participation and an overview of the procedures.

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What to Expect as a Parent or Legal Guardian

Family decisions about children or others who have legal guardians and healthcare can be extremely delicate. While the reasons and steps for enrolling a family member under your care in a study are similar to enrolling yourself, it is understandable there may be a deeper level of anxiety.

If you are considering enrolling a family member, researchers will outline all aspects of the study including the intervention, benefits and risks, necessary procedures and length of time. If you decide to participate, parents or legal guardians (and the child, depending on age) must sign an informed consent form and, depending on age, the child will provide assent to participate in the clinical trial.

Throughout the study, research team members, including doctors and nurses, will always be accessible to monitor your family member’s health. Remember that participation in the trial is voluntary and that you have the right to stop your child from participating at any time. When the trial concludes, the team will work with your family to coordinate appropriate ongoing care.